Such facilitation, proponents claim, unlocks hidden literacy inside people previously considered severely cognitively impaired. In 2021, Robert F. Kennedy Jr.
interviewed the father of a speller who wrote a book with his son. Discussing his takeaways from the book, Mr. Kennedy says the son "learned to do calculus in essentially a day." According to "The Telepathy Tapes," a popular podcast that first aired in 2024, there are spellers who can read their facilitators' minds.
Here's the thing about F.C., though: The science doesn't back it up.
[...]
Despite these consistent findings, support for spelling has persisted. In a January
report, one spelling proponent estimated that the number of trained spelling practitioners was around 1,000, up from just a handful that she knew of a decade ago.
Spelling proponents are pushing for government backing: In the New York State Legislature,
debate around the adoption of a communication bill of rights for people with severe intellectual disabilities has effectively come down to whether it would only apply to methods that are "validated."
Sylvia Fogel was recently appointed to head the Interagency Autism Coordinating Committee, which
advises the federal government on its five-year, $2 billion budget for autism services and research. In a March interview, she
said that among other things, her committee will "be focused on investigating or hoping to recommend more research around novel communication methods like typing and spelling for those with minimally verbal or nonverbal autism."
This all matters because resources poured into pseudoscientific methods like facilitated communication obviously can't also be directed toward the most intractable problems profoundly autistic people face, including self-injury, seizures, wandering and, yes, communication challenges.
Upward of
25 percent of autistic children are nonverbal or minimally verbal, and while many successfully learn to use Augmentative and Alternative Communication systems, not all do. Developing tools to enable all autistic people to authentically and independently communicate their needs and preferences is obviously a top research priority for the profound autism community.
But it's not all about money or opportunity costs. The most serious harm created by F.C. is that it deprives severely cognitively impaired individuals of the limited control they have over their own lives.